ENDOMETRIOSIS, CROHNS + CELIAC DISEASE DIET BLOG

Wheat, Gluten, Dairy, Egg, Lactose, Refined Sugar, Caffeine, Red Meat, Soya & Rice Free Recipes

Suitable For Endometriosis, Crohns ,Celiacs Disease IBS (Irritable Bowel Syndrome) Sufferers - Some Recipes Are Also Nut-Free, Vegan & Raw

Sunday, 11 August 2013

Cystoscopy & Hydro Distention - My Experience

Cystoscopy & Hydro Distention

Cystoscopy:A cystoscopy is a medical procedure used to examine the inside of the bladder.
It's carried out using a cystoscope, a thin, fibreoptic tube that has a light and a camera at one end.
The cystoscope is inserted into the urethra and is moved up into the bladder (the urethra is the tube that carries urine from the bladder, out of the body). The camera relays images to a screen where they can be seen by the urologist (specialist in treating bladder conditions).
Most cystoscopies are performed as outpatient procedures, so you'll be able to go home on the same day.
Hydro Distention: Hydrodistention literally means to distend the bladder with water. Water (saline or a glycine solution may also be used) is instilled into the bladder to a relatively high pressure (80-100 cm H20). When the water is released from the bladder


                                           My Experience

When I had my date for my op i was pleased and also nervous, as anyone would be with anything that is going to be put inside you when your asleep or awake!...anyway i was happy that something might be done or found that they could fix or just tell me what was going on.

7.38 we arrived at the urology outpatients and their were already two other ladies waiting, it was only a short wait before i was called in and seated by a bed in the after Op recovery, recovery room. Then a nurse took my sample to test and placed my hospital & allergy bands around my wrists. 
At around 8.30 i was seen by a very pleasant anaesthetist which went through everything with me, I asked for her not to use any sort of morphine derivatives on me ( as anyone knows from my endometriosis experience it didn't go very well) but she confirmed and said i wouldn't need it anyway even if i'd wanted it.
Soon after the Dr came to see me, he was also lovely and made me feel at ease and calm about the whole process, I signed a few forms and was told i was second in line to go in.
In the mean time i read a magazine and the atmosphere was very peaceful, a couple of ladies were told they couldn't have theirs done because of infections and other problems. (which apparently some Drs will still go ahead and do the op even with infections but my Dr was strict due to the increase of risks during the operation and in rare cases septicemia)  
At approximately 9.25 i was told to get changed into my hospital gown, then i walked to the waiting area and climbed onto the trolley bed before getting driven into the anaesthetists room. 
Whilst in the anaesthetist's room they made me feel comfortable, put an IV in my arm, surprisingly quickly compared to normal and sent me to sleep.

All of the above is my step to step guide to a normal before operation experience for anyone awaiting either or both of these operations or really quite a few operations really. 

I was told (the day after) that my operation went well and they found Nothing! only a little red patch which was normal. But shortly after the operation the Dr told my parents that I had had a full blown massive fitting seizure right in front of the whole team and the Dr, this went on for a straight 10 minutes before they decided that it wasn't going to calm down and put me to sleep again and shoved a tube back down my neck to help me breath and to prevent me doing any harm or any more harm to myself. 
They rushed me down to have a CT (a nurse told me after I'd had a CT and a brain activity measurement done) whilst waiting for the results they had me hooked up to a heart monitor, breathing apparatus and a ventilator, saline solution and a constant blood pressure monitor. 
I was having fitting seizures for around 10 hours on and off with 5-15 minutes intervals. 
Every time i had a fitting seizure the nurse would record everything also checking my eyes but there was no activity she was trying to find a link or a pattern but said there didn't seem to be any at all, my parents said that she was excellent and didn't want to leave my side at anytime.
They told me I had swarms of nurses around me at one point and Drs the next, The Drs were apparently very pleasant and introducing themselves before swiftly jabbing me very hard in the chest to try and awake me from my unconscious state, they scrapped the bottom of my feet hard and also flopped various body parts to see if this would help but nothing did.
The results came back and my parents were told that my  brain was not reacting to my fitting seizures which was a good sign as that meant that i didn't have epilepsy, But the Drs were stuck on what was causing these episodes. 
They quizzed the anaesthetist and my parents about how emotional i was before the operation and what i was like everyday and if i was happy!?!. This to mean seams like they were running out of ideas!, The anaesthetist said i was ok but very anxious about giving her giving me morphine, It couldn't be the anaesthetic as i'd been given the same one for the last four operations. 
and my parents told them i was normally happy, which anyone that knows me knows i am happy. They also told them that this had happened before whilst coming off anaesthetics but not very long and not to this extent. 
well anyway this didn't stop them from naming my fitting seizures as Pseudoseizures!! I am appalled by this as if you look up what this means, they are sometimes called fake seizures that people have when they have a psychological problem or have had a history of abuse, or are doing it for attention! I can tell you that i do not think it is physically possible for me to have done it for that long and unconscious, also i have no psychological condition nor a history of abuse and I also cannot believe that the fits before had not been recorded from previous coming out of anaesthetics before.
Anyway on with my experience, they wanted to sedate me to be able to get me to go to sleep but my parents didn't think this was the greatest idea as it might have started something else which was really unnecessary since i was showing signs of improvement.  
Coming out of the anaesthetics and being to regain consciousness going in and out, my parents said i would be talking then next minute id be gone again, It is just weird being able to hear and not be able to move, then when i was more conscious and fitting less and less and able to move and talk i was recovering quite quickly....I was soooo tired at around 12/1 in the morning i was moved to HDU (high dependency unit) once i was moved and wriggled onto the bed i was off to the land of nod.
The next day i felt like i had the biggest of all hangovers, my whole body just wanted to be asleep and was achy due to the intense workout from the day before, i couldn't open my eyes properly but the Sister that was looking after me was great, she got me special ordered fruit from the restaurant when i told her i couldn't have dairy, wheat or gluten. I was given mixed grapes and a pot of mixed pineapple, apples, melons and grapes. I ate the one pot and i felt a little more awake. 
The nurse took the catheter out because it was hurting and there was no need for it anyway, I needed the toilet shortly after and i felt extremely dizzy, so a  nurse helped me, actually urinating was very hard and enormously painful, the second and third times were just as painful but a little easier to release but i had to push for the last 100ml or so the Sister gave me paracetamol to take. 
I slept for most of the day, When dinner came it was a massive plate of jacket potato and baked beans, and a jelly for dessert. I didn't have the heart to say i didn't eat white potato or baked beans and i was so unbelievably hungry all of a sudden. So i gobbled that down the lot and got a huge surge of energy and was talking to the Sister quite well and the dizziness was to a minimum too.
 I then fell asleep again before waking up to be sick, who knows if this was the fault of the anaesthetic or the food, my energy went down and i felt awful again and fell back to sleep.
My parents came to get me at 2 and i just wanted to go home to sleep, it was very hard to stay awake to get dressed and hard to concentrate with quite a few things happening at once. I tried to walk but i was feeling very dizzy so a porter took me to the car and was surprised i was allowed to go home.    
At home i slept like a baby, really i did! well apart from being woken every hour to drink, to make sure i was hydrated. I slept forever it seemed, But little by little my ability to stay awake has become more, I still have a problem with concentration when a lot of things are going on, slight pains in my head and still a lot of pain when i urinate but this is now the fifth day after my operation and i think im recovering pretty well considering.
I am now waiting on a follow-up with the urologist and Neurologist.

But that is my experience and I hope yours is much easier, If you want to share your experience with me email me or leave a comment.

All The Best 
       x x x        


Thursday, 1 August 2013

KitchenAid Artisan! Excited!

KitchenAid Artisan in RED!
Wanted to share my news with you all....

This isn't a recipe but instead a kitchen appliance, but not any appliance! a KitchenAid Artisan! I am over the  moon with my purchase and it is beautiful, I love the colour Red so i am so Happy. Can you tell?, I am thinking of painting something on it mind, not sure what though. Spots? Damask? My name?. 

I have been wanting to create marshmallows for a loooong time now, that are vegan. gluten free, low in sugar and raw. So i am going to get creating and hopefully succeed. I know your probably thinking:
 "you bought a kitchenAid just to make marshmallows! are you mental??!" 
Well it would seem so, but i think they are just so beautiful, with its swing back head and 10 speeds, I actually don't care much for the add-ons, even though the pasta and mincer do look intriguing i will be staying away for a while yet!. 
Since I am trying to cut down my sugar intake to a minimum and do not use eggs apart from my marshmallows (which I am not mighty mouse to be able to do by hand) I cannot think of anything else to use my kitchenaid for that i couldn't do by hand...oops.

Soo I was thinking maybe you could think of other things I could make with this that i wouldn't be able to do with my hands or Vitamix?

x x x 

No Tomato BBQ Turkey Pizza with Crusty Base

 BBQ Turkey Pizza with Crusty Base
Gluten Free, Wheat Free, Rice Free, Refined Sugar Free, Red Meat Free, Soya Free, Egg Free, Dairy Free, Lactose Free.

With this recipe you can use any left over vegetables and turkey dippers to top the pizza.

Ingredients:
Base:
4oz Amaranth Flour
2oz Tapioca Starch
2 Tbls Pysllium Husk Flakes (Optional)
2 Tsp Parsley 
2 Tsp Orgran No Egg
3 Tbls Grapeseed Oil
3 Tsp Cyder Vinegar
1 Tsp Lemon Juice
1 Tsp Pepper
150ml Water
Pizza Toppings:
1/4 Red Onion
1/2 Courgette
4 Chestnut Mushrooms



Make your Crisy Turkey Dippers first, or use any you have left-over.


Pre-heat or Leave your oven on at gas mark 5.









Meassure out all of your pizza base ingredients into a bowl.




Now mix in all of your water little by little until it has turned into a thick paste.


Brush a little oil onto the baking tray.

Now spread your paste into your desired shape onto the baking tray.

Pop the tray into the oven for 10 minutes.

Turn the tray.

Turn the oven up to gas mark 7 for 15 minutes.

Flip the Base over and cook for a further 5-8 minutes. or until crispy.






Chop and slice your onion, mushrooms and courgette.



Spread your no tomato bbq sauce onto the pizza base. You can add more or less it up to you.








Add your vegetables or any left-over vegetables you have.




Now top with your turkey dippers.

Pop into the oven for 15 minutes.








Now serve with anything you like or have it on its own.
















x x x 

Tuesday, 30 July 2013

THANK YOU x x x


If you would like to donate to WERF then please visit: http://www.justgiving.com/Josephine-Eliza x x x

Tuna Mayo Stuffed Mushrooms

 Easy Peasy 
Tuna Mayo Stuffed Mushrooms
Gluten Free, Wheat Free, Rice Free, Refined Sugar Free, Red Meat Free, Soya Free, Egg Free, Dairy Free, Lactose Free.

This can be made for a great tasty starter or as a light lunch / dinner.

Ingredients:
5 Chestnut Mushrooms
1/2 Tin of Tuna
1/2 Tsp Dried Parsley
4 Tbls Vegan Mayo


Pre-heat your oven to gas mark 5.

Grab your chestnut mushrooms

Peel and Pop the stalks out.

Chop your stalks up, they can be used in the filling.


Put your tuna, chopped stalks and parsley into a bowl.

Add your vegan mayo and combine.


Spread out your mushrooms on a baking tray and start spooning your mixture into your mushrooms.


Put them into the oven for 15-20 minutes or until golden on top.


They should be piping hot when they come out so watch the juices as your take the tray out of the oven.








If you would like to top them with a sauce you can add a Tbls of vegan mayo to a ramekin and add 1 Tsp hot water to thin it down.

and then just pour over each of your mushrooms and sprinkle a little dried parsley over the top.



x x x



Monday, 29 July 2013

An easier way to make white chocolate

An Easier White Chocolate Method
Vegan, Wheat Free, Gluten Free, Soya Free, Rice Free, Refined Sugar Free
Crohns, Coeliac & Endometriosis Safe 

I have experimented with my white chocolate recipe a little more in the way that it is prepared, This method is 100% fool proof and will not go wrong. The other recipe you needed to take your time mixing and there was a fine line better the right consistency and it splitting but this one is simple and straight forward, Just in time for easter!

Ingredients:
3.5oz 100% raw cocoa butter
1 tsp vanilla bean paste
2oz unrefined icing sugar
2 heaped tsp almond flour
a couple pinches of salt
squirt agave nectar





Melt you Cocoa Butter by placing it into a bowl ontop of a pan of simmering water.















Whilst your cocoa butter is melting sift your icing sugar into a bowl.



Now your cocoa butter should look like this.











Slowly add your melted cocoa butter a tablespoon at a time into your icing sugar stirring the mixture each time you add your cocoa butter.










Half way through your mixture should look like this.

There is no signs of splitting or firming up because there is no direct heat this time.







Now it is time to add the rest of the ingredients.

Stir them all in thoroughly.

Your white chocolate is now ready for a mold or baking paper and a tray to harden.

Then put it in the fridge to set.



x x x















Nut-Free & Coconut-Free Vanilla Cream & Chocolate Cream with cheats Chocolate Strawberry ice's

 Nut-Free Vanilla Cream and Chocolate Cream
Vegan, Nut Free, Gluten Free, Wheat Free, Rice Free, Refined Sugar Free, Soya Free, Egg Free, Dairy Free, Lactose Free.

I have made this for a Coconut Sensitive nut allergy Endo Sufferer. Hope you enjoy it. 
Cheats chocolate strawberry ice's at the bottom.

Ingredients:
Vanilla:
3 Heaped Tsp Seed Butter (Recipe Here)
7 Tbls Warm Water
2 Heaped Tsp Vanilla Paste
1 Tbls Agave Nectar
For Chocolate Add:
2 Tbls Carob Powder


Add all of the ingredients to a blender and blitz until you have you desired consistency.






You can pour it on Chocolate Banana nut-free ice-cream.



For chocolate cream just add the carob to the mixture and blitz until smooth.

Best served chilled.


Cheats Chocolate Strawberry Ice's.

Just freeze your strawberries and Dip!

x x x

Sunday, 28 July 2013

Strawberry Cream Crumble

Strawberry Cream Crumble
Vegan, Gluten Free, Wheat Free, Rice Free, Refined Sugar Free, Soya Free, Egg Free, Dairy Free, Lactose Free.

Ingredients: 
1 Can Coconut milk 60% fat content
1 Tsp Vanilla Paste


First pop your can of coconut milk into the freezer for an hour.

Now when you open your can the coconut cream with have risen to the top making a thick cream.

If it hasnt seperated then leave it for a bit longer.

Scoop all of the cream from the top and keep the coconut water for another recipe.
 



Add your vanilla paste to the cream and stir. 

If your cream is look a little limp then pop it in the fridge for a while until it thickens again.





Spoon out some of your jam into your choosen glass for the desert.











Next scoop the cream you have made onto the top of the jam to make the next layer.

And finally Crumble your biscuits ontop of the cream to make the last layer.



There you have it a lovely smart summer desert.



x x x